TIPS FOR
CAREGIVERS

I DON’T HAVE SICKLE CELL, BUT MY LOVED ONE DOES. WHAT CAN I DO TO OFFER SUPPORT?

There are many ways to support loved ones throughout their journey with sickle cell.

  • Learn as much as you can about sickle cell
  • Help find supportive doctors who understand sickle cell and who stay up-to-date with developments in the care of sickle cell
  • Encourage your loved one to schedule and keep regular doctor's appointments. Attend appointments with them for support
  • Get connected to local and/or national sickle cell organizations and advocates
  • Stay positive. Help your loved one find ways to avoid or manage stress at home, school, or at work
  • Listen a lot. Ask your loved one to tell you the ways in which they would like to be supported
  • Ask for and accept additional help when needed, for yourself and for your loved one